Disclaimer

The CACNA1H Alliance, which operates under the CMCD Foundation, cannot verify every claim made by a third party contributor to our website and is not responsible for their authenticity.

The content provided by the CACNA1H Alliance is for information purposes only and is in no way intended to be a substitute for medical consultation with a qualified professional. The CACNA1H Alliance encourages Internet users to be careful when using medical information. If you are unsure about your medical condition, consult a physician. Although we carefully review our content, the CACNA1H Alliance cannot guarantee nor take responsibility for the medical accuracy of documents we publish, nor can it assume any liability for the content of websites linked to our site.

Privacy Policy

Scope

This statement applies to all websites and pages operated by or on behalf of the CACNA1H Alliance. Any person accessing, browsing, or otherwise using the CACNA1H Alliance website (“Site”) or associated pages ("Pages") to the extent permitted hereunder shall be considered a “User” under this privacy policy. All Users are bound by the terms of this privacy policy. The CACNA1H Alliance is committed to protecting the privacy of our Users. This privacy policy discloses the privacy practices governing the use of information submitted to the CACNA1H Alliance through this Site.

Information Use

The CACNA1H Alliance collects information from users through several points on the Site/Pages such as making a donation, signing up for the CACNA1H Alliance newsletter, and online event fundraising. The primary reason for the CACNA1H Alliance to collect personal information is to provide personalization options for our website/page visitors, and to facilitate website features that require user input.

Personal financial information in the form of a credit card number and expiration date are only collected if a user wishes to make an online donation through the Site. This information is not maintained by the CACNA1H Alliance when entered online. All online transactions are securely transmitted through the use of Stripe or PayPal.

User information submitted through the CACNA1H Alliance Site/Pages is only used for the purposes for which it was collected.

Cookies

Cookies are small files that a site or its service provider transfers to your computers hard drive through your Web browser (if you allow) that enables the sites or service providers systems to recognize your browser and capture and remember certain information.

The CACNA1H Alliance uses cookies to compile aggregate data about site traffic and site interaction so that we can offer better site experiences and tools in the future. We may contract with third-party service providers to assist us in better understanding our site visitors. These service providers are not permitted to use the information collected on our behalf except to help us conduct and improve our business.

Communication
Newsletter

If a user wishes to subscribe to our newsletter, we ask for contact information required for basic registration to the site through MailChimp, consisting of a working email address.

Sharing
Legal Disclaimer

The CACNA1H Alliance makes every effort to preserve user privacy, however, we may need to disclose personal information when required by law wherein we have a good-faith belief that such action is necessary to comply with a current judicial proceeding, a court order or legal process served on our website.

The CACNA1H Alliance may need to share personal information with third parties in other limited circumstances. For example, we may release personal information to third parties to perform services on our behalf such as: advising you of our upcoming events, products, volunteer opportunities, or processing credit card payments. The CACNA1H Alliance may also make your name and postal address available to other nonprofit organizations whose services or activities may be of interest to you. Although we will make every attempt to preserve user privacy, due to the variability of third party policy, the CACNA1H Alliance will not assume any liability for any breach of personal information by third parties. If you would like to opt-out of having the CACNA1H Alliance share your name and postal address with third party organizations, please email info@cacna1halliance.org and type 'do not share' in the subject line of your email.

Third Party Links

Occasionally, at our discretion, we may include links to third party websites. These third party sites have separate and independent privacy policies. We therefore have no responsibility or liability for the content and activities of these linked sites. Nonetheless, we seek to protect the integrity of our site and welcome any feedback about these sites.
 

California Online Privacy Protection Act Compliance

Because we value your privacy we have taken the necessary precautions to be in compliance with the California Online Privacy Protection Act. We therefore will not distribute your personal information to outside parties without your consent.

Children's Privacy

The Site is not intended for the use of unsupervised children under the age of 13. The CACNA1H Alliance never collects or maintains information on our website from those we actually know are under the age of 13. 

The Children's Online Privacy Protection Act (COPPA, see: www.coppa.org) protects the personal information of children under the age of 13. This applies to individually identifiable information about a child that is collected online, such as full name, home address, email address, telephone number or any other information that would allow someone to identify or contact the child. The Act and Rule also cover other types of information--for example, hobbies, interests and information collected through cookies or other types of tracking mechanisms--when they are tied to individually identifiable information. It is important for you to understand this law; we encourage you to read more about COPPA.

Security

The CACNA1H Alliance has security measures in place to protect against the loss, misuse and alteration of information under our control. However, we cannot guarantee that such security measures will be sufficient, will not be breached, and that your personal information may not be disclosed or otherwise accessed in an unauthorized manner. Certain information may be transmitted to you by electronic mail. Although it is illegal to intercept or disclose these messages under Federal law, these transmissions are not secured.

Your Consent

USE OF THIS SITE SIGNIFIES YOUR AGREEMENT TO THE TERMS OF USE AND THIS PRIVACY POLICY.

Changes to our Privacy Policy

If we decide to change our privacy policy, we will post those changes on this page so we encourage you to check this page regularly. Your continued use of the Site will constitute your acceptance of such changes.

Contacting Us

If there are any questions regarding this privacy policy you may contact us using the information below:

www.cacna1halliance.org
46 Hoffman Rd.
Saratoga Springs, NY 12866
United States
info@cacna1halliance.org
(518) 469-8406